News and Events

22q at the ZOO 2022

Sydney - Parramatta Park: Sunday 22nd May 2022

Join us to celebrate 22q at the ZOO 2022. The event will be held in Parramatta Park (Mana Shelter picnic area). There is an undercover picinic area, BBQ, close to play ground and toilets. $10pp, CHILDREN UNDER 3 FREE

Ticket price includes:

  • Petting Zoo with ducks, chicks, calf, goats, lambs etc.......-

  • Face Painting and

  • Sausage Sizzle (special dietary requirements are your own responsibility)

Visit for park map and for details on how to access the park.

22q11.2DS Family Meeting and Social Dinner, Sydney NSW 

SAVE THE DATE : Saturday 13th August 2022

We have changed the format of our annual conference to meet the ever growing need for connection and networking with others on a similar journey. We are holding a family meeting and social dinner. The event is being held at Norths Cammeray (North Sydney) . A full program will be out soon.

Guest Speakers include:

  • Dr Laura Roche - How we might alter the long term mental health outcomes of children by providing them with socio-communication intervention early in life and telehealth services

  • Glenn Fuller - Lived experience from a fathers perspective

  • Jessica Bracey - Receivng a diagnosis during lockdown and trying to navigate the complexities of 22q

  • Panel discussions with 2 dads, 2 young women living with 22q, mother of an adult with 22q, mother of a toddler with 22q and Clinical Pyschologist Dr Linda Campbell

  • Facilitated afternoon break out sessions for :

    • Young Adults with 22q (people who have 22q between the ages 15-30)

    • Parents of young children with 22q

    • Parents with adult children with 22q

Then we move into the evening social dinner. Children and family welcome. It's sure to be a great day and evening for all involved.

2021 the year in review

2021 has been a very challenging year globally. The 22q Foundation Australia and New Zealand continued to work on raising awareness and connecting families through our website, social media and at 22q at the Zoo. Heres a list of this years achievements. 

  • We were fortunate enough to host our first ever 22q Mothers Retreat before covid lockdown

  • We were successful in obtaining 2 eductaional grants to support the Care4Parents programme. The first program has been delivered and the second will begin in 2022

  • We hosted 22q at the ZOO in May 2021

  • We partnered with Roche Diagnostics to produce a 22q11.2 infomation video

  • We partnered with Banquet Creative, Roche Diagnostics and Full Hammer to create a 22q awareness month campaign leading into Pink and Blue for 22q on the 22nd November

  • A number of our families featured in main stream media incuding; 

    • TV interviews​

    • Newspaper Articles

    • Magazine features

  • Finally we worked with a TV producer to complete our new Community Service Annoucement for inclusion on Channel 7 television advertising