News and Events

​​

The 22q Foundation Australia & New Zealand proudly presents More Than You Can Imagine: The Power of Being Seen — a Rare Disease Day celebration bringing together individuals, families, advocates, clinicians and organisations from across the rare disorders community.
 

This special evening recognises the importance of visibility, representation and inclusion, and the impact that truly being seen can have on individuals and communities living with rare conditions.
 

We are honoured to welcome Rick Guidotti, internationally recognised photographer and founder of Positive Exposure, as our special guest. Rick’s work challenges perceptions of difference and highlights the beauty, dignity and individuality of people living with genetic, physical and intellectual differences. His powerful storytelling through photography has changed the way the world sees diversity — and how people see themselves.

​

Held in Auckland on Saturday 28 February 2026, this event aligns with Rare Disease Day and is open to all members of the rare disorders community. It is a celebration of connection, shared experience and the collective strength that comes from standing together.
 

Guests will enjoy cocktail-style food, with drinks available for purchase, in a welcoming and inclusive setting. Of course some fundraising! 
 

Event Details:

📅 Saturday 28 February 2026
📍 Kiwi Ballroom, JetPark Hotel
📌 63 Westney Road, Auckland
⏰ 6:00pm
🎟 $75 Adults | $35 Children (15 years and under)
🍴 Cocktail food included