Supporting people with 22q11.2 Deletion or 22q11.2 Duplication Syndrome.
Awareness, Education, Community & Support
The 22q Foundation Australia & New Zealand are looking to host 22q Connect. 22q Connect is a day for Teenagers and Young Adults to come together in a safe, social and friendly environment. The day is for people 15 years to 30 years old who have 22q Deletion or Duplication Syndrome that would like to meet others on a similar journey. Parents will be able to connect on the day as well in a seperate workshop.
Do you have a teenager or young adult child (aged 15-30) with a diagnosis of 22q11.2 Deletion Syndrome, and currently live in Australia? If so, we need your help! In collaboration with the 22q Foundation Australia and New Zealand, Dr Linda Campbell and her research team from the University of Newcastle are investigating the lived experiences of teenagers and young adults with 22q11DS and their families.
We would like to invite you and your teen/adult child to participate in focus groups to talk about your experiences with a particular focus on what is and what is not working for your family, your hopes and worries for the future, and your needs for support and knowledge. We will hold separate sessions for parents, teenagers and young adults.
To find out more about this opportunity to have your voices heard, please click here to read the information statement and to register your interest using the contact form.
The first scheduled focus groups will be held in Sydney on the 9th of May, 2020 at the Crows Nest Centre, Crows Nest NSW - if you are able to attend that day, please let us know using the same contact form.
If you know anyone who might be interested, please SHARE the link to this webpage to help us reach as many people as possible.
Thank you for your help!