
Supporting people with 22q11.2 Deletion Syndrome & other 22q related conditions.
Awareness, Education, Community & Support



The 22q Foundation Australia and New Zealand are here to offer practical information, access to research and connections to other families on a similar journey.
Whilst our main focus is on 22q11.2 Deletion Syndrome we do offer basic information on other conditions affected by chromosomal abnormalities on the 22nd chromosome in the "q" region.
We understand that receiving a new diagnosis can be daunting and we hope that the information provided on our website is helpful and practical. To find out more about managing children and adults with 22q11.2DS visit our Newly Diagnosed page or click the links in the boxes below.
All committee members of the foundation are volunteers. Should you wish to contact us please use our contacts page.
Membership to our foundation is free. Feel free to join here.
Medical Disclaimer - All content and media on the 22q Foundation Australia & New Zealand website and social media pages are created and published online for informational purposes only. It is not intended to be a substitute for professional medical advice and should not be relied on as health or personal advice. Always seek the guidance of your doctor or other qualified health professionals with any questions you may have regarding your health or medical condition. The foundation does not endorse any information provided by members on our social media pages and recommends members seek professional medical advice before using any suggested treatments.