The 22q Foundation Australia and New Zealand are here to offer practical information, access to research and connections to other families on a similar journey. 

Whilst our main focus is on 22q11.2 Deletion Syndrome we do offer basic information on other conditions affected by chromosomal abnomalites on the 22nd chromsome in the "q" region. 

We understand that receiving a new diagnosis can be daunting and we hope that the information provided on our website is helpful and practical. To find out more about managing children and adults with 22q11.2DS visit our Newly Diagnosed page or click the links in the boxes below. 


All committee members of the foundation are volunteers. Should you wish to contact us please use our contacts page.  

Membership to our foundation is free. Feel free to join here.

22q at the Zoo
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22q children
22q Charli & Carly