Supporting people with 22q11.2 Deletion or 22q11.2 Duplication Syndrome.
Awareness, Education, Community & Support
The NDIS is Australia’s first national Scheme for people with disability. It provides funding directly to individuals.
7 Years and Under
22q11.2 Deletion Syndrome (VCFS/DiGeorge) is listed on List D, that is a permanent impairment/early intervention, under 7 years. No further assessment required. This means that children under 7 years of age can access the NDIS without demonstrating functional capacity. You will need proof of the diagnosis from your doctor.
Over 7 Years
22q11.2 Deletion Syndrome (VCFS/ DiGeorge) is a conditon that may be eligible for NDIS funding under List B.
That is Chromosomal abnormalities resulting in permanent impairment and not specified on List A. They are Conditions that are likely to result in a permanent impairment.
People diagnosed with List B medical conditions are considered to have a permanent impairment. However, as the severity of the impairment is variable, they will need to demonstrate that as a result of their impairment: they have substantially reduced functional capacity or psychosocial functioning; their capacity for social or economic participation is affected; and they are likely to require support under the NDIS for the duration of their lifetime.
For more information and to apply for the NDIS visit the NDIS website.