Help us to get 22q11.2 Deletion Syndrome listed as a
Recognised Disiability by the Australian Government
Currently 22q11.2 Deletion Syndrome is not recognised by the Australian Government as a recognised disability on "The Guide to the List of Recognised Disabilities based on determinations approved in 2005, 2006, 2010, 2011 and 2014 by the Secretary of the Australian Government Department of Social Services". This makes getting Carer Allowance and Carer Payment and many other Centrelink benefits difficult to access.
The 22q Foundation Australia & New Zealand are asking all of our Australian Families to assist us to get the condition recognised by contacting your local MP outlining details of the condition and how it affects you and your family.
The foundation encourages you to develop a relationship with your local Federal MP and share with them your current experience of living with 22q11.2 Deletion Syndrome. Currently the Foundation is urging the Federal Government to have 22q11.2 DS included on the recognised list of disabilities to make access to benefits easier for our families.
To assist us in having the syndrome recognised we ask that contact your federal MP.
Send your MP a letter introducing yourself and explaining how you and your family live with a 22q11.2 Deletion Syndrome. Download this example to help guide you with drafting your letter.
Phone his/her office and make an appointment to hand deliver the letter and speak with them further.
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